An International ‘Online’ Patients’ Meeting




On Thursday 9th December from 10.15 a.m. – 16.00 p.m, the Graham Hughes International Charity will be hosting an International ‘Online’ Patients’ Meeting, designed for Hughes Syndrome patients and including a fantastic line-up of talks from experts in the field.

From Hughes Syndrome causes to diagnosis and treatment, lifestyle management and more, this patient day will cover a wide variety of topics with valuable information that will benefit those in the Hughes Syndrome community seeking to understand more about the condition. You can view the full programme for the day here. 

This patient event is free to attend, however if you would like to make a donation to the Graham Hughes International Charity it would be extremely appreciated. We receive no government funding, so your donation will enable us to continue to provide essential information and support to people with Hughes Syndrome across the UK.

Once you’ve registered for the event we will be in contact nearer the time with more information, alongside the link to join on the day.

For any questions about this event, please email

We look forward to having you join us on 9th December for what is set to be a fantastic event!


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